Managing Medical Issues Navigating the Storms

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What Are Your Feelings When Your Good Test Goes Bad?

My feelings? Initially, not good! Just hours after I finished my last post about laughter, a horrendous week of medical surprises began. Including bad medical news received along the way! Condensed version: Two crummy problems. One still unresolved; one that seemed to last forever. Unusual (actually, weird) hearing issues in my left ear started this […]

Less Strength! More Fatigue! How to Adapt This Time?

I need your help on this one. My pain is better, but my fatigue and strength level are worsening. The need to cope with invisible disability exacerbations can be discouraging and daunting. I’ve been writing advice for you for seven years and have even authored a book about it, but I am having trouble this […]

How To Find New Purpose With Chronic Illness

Connected Carole’s note: my apologies for not presenting Part Two of Lydia’s post about caregiving for her father when she herself needed care. Lydia has experienced a severe flare. Please keep an eye out for it as I will post it when she is able to write again. Meanwhile, please enjoy Patti Burkett’s guest post […]

What do you do when bad things get worse?

Do dwellers ever have good days? Most of us do, but maybe only a day here and there. Unfortunately, overall our lives are filled with hard things. Probably most invisibly disabled people also experience worse days—a bad flare, new symptoms, or new diagnosis. So, what do we do when bad turns to worse? What invisible […]

I CAN’T Go Through This! This Is TOO Hard!

Coping with invisible disability flare-ups can be a daunting experience. How do you feel when yet again your problems exacerbate? Do you feel like you just can’t go through it again? Or maybe it’s not a flare. Maybe it’s an all-the-time experience. How do you cope? My 8 year-old granddaughter tripped in front of their […]

Life Brings Changes: What Will Your Response Be?

Change is inevitable, but how we react to that change impacts our quality of life. The invisibly disabled respond to changes in a variety of ways -- some good, some not so good. At age 31, I was a happily married mother of two young sons. My husband was a graduate student. I worked at […]

Finding Your Balance Relates to Accepting Invisible Disabilities

“My own personal balance between humility, confidence, independence, and dependence was still sorting itself out.” Finding balance in your attitudes and activities helps in the process of accepting your limitations. The quote above shows the approach Captain Scotty Smiley, a blind Army officer, used in coming to terms with his loss of sight. Each of […]

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