Medical Themes Navigating the Storms

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What Are Your Feelings When Your Good Test Goes Bad?

My feelings? Initially, not good! Just hours after I finished my last post about laughter, a horrendous week of medical surprises began. Including bad medical news received along the way! Condensed version: Two crummy problems. One still unresolved; one that seemed to last forever. Unusual (actually, weird) hearing issues in my left ear started this […]

Less Strength! More Fatigue! How to Adapt This Time?

I need your help on this one. My pain is better, but my fatigue and strength level are worsening. The need to cope with invisible disability exacerbations can be discouraging and daunting. I’ve been writing advice for you for seven years and have even authored a book about it, but I am having trouble this […]

What Do You Know About Rare Diseases?

Rare diseases. Know much? Do children? Last week’s guest post educated us about FAP and SBS and helped us understand how support encouraged her as a teenager. Today, let’s look at Jenny Jones’ children’s book, Life’s A Polyp, with Zeke and Katie. My first injury occurred in 1978 but remained undiagnosed until 1982. Even then, […]

The Strength of Support

Jenny Jones guest post, “The Strength of Support,” outlines her lifelong experiences with two rare diseases. She describes how the support she finally found helped her. Jenny writes Life’s a Polyp to encourage and educate people. I was only a child in the 90’s when I was diagnosed with two rare diseases – Familial Adenomatous […]

What to Do After a Diabetes Diagnosis

CJ Walker’s guest post today is about what to do “After A Diabetes Diagnosis.” She gives us eight steps to take. Personal note: After living sixteen years with a diabetic husband, I wholeheartedly endorse her ideas.CJ helps others understand how to live successfully with diabetes. She blogs at The Genetic Diabetic and writes for The […]

Medical gaslighting – A Sad, Big, and Real Problem!

Is medical gaslighting even real? Does it affect invisibly disabled people? What is it? Painscale.com describes it thus: “Medical gaslighting occurs when a physician or other medical professional dismisses or trivializes a person’s symptoms. They may mistakenly determine that pain or other symptoms are not real or simply a result of stress or depression. When […]

Do We Have to Talk about End of Life Issues Now?

CONTENT WARNING: Today I visit an unpleasant subject: end of life issues from the viewpoint of invisibly disabled people. Few people want to think about death, but it eventually comes to us all. Trying to make decisions at that time is extremely emotional. Considering those concerns beforehand gives the affected person, their family, and their […]

Invisibly Ill with Sjogren’s Syndrome. What Now?

Becky Kluckner, today’s guest writer, shares the story of her diagnosis of Sjogren’s syndrome and how she copes. She, her mother, and sister write “Life on Sixth Street,” a Christian family lifestyle website. Emily contributed in May and her mother in June. The story begins After years of random, uncomfortable symptoms like dry eyes, dry […]

Are You Prepared for an Urgent Medical Need or Emergency?

Unfortunately, we dwellers may be more prone to urgent medical needs or even emergencies. But are we ready? We need to seriously consider medical emergency preparation for invisibly disabled people. I didn’t, and I regretted it. Recently, I experienced a repeated need for urgent medical care. Without this care, the need could easily have turned […]

What Happens When the Chronically Ill Get Sick?

Sickness and chronic illness. But, if a person is chronically ill, aren’t they sick all the time? Maybe, maybe not. Chronic illness has become a catchall term encompassing disorders as well as actual illness. Therefore, many invisibly disabled people cannot function normally, even though their health is good. I fall in this group. My problems […]

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