Medical issues Navigating the Storms

What Do You Know About Rare Diseases?

Rare diseases. Know much? Do children? Last week’s guest post educated us about FAP and SBS and helped us understand how support encouraged her as a teenager. Today, let’s look at Jenny Jones’ children’s book, Life’s A Polyp, with Zeke and Katie. My first injury occurred in 1978 but remained undiagnosed until 1982. Even then, […]

The Strength of Support

Jenny Jones guest post, “The Strength of Support,” outlines her lifelong experiences with two rare diseases. She describes how the support she finally found helped her. Jenny writes Life’s a Polyp to encourage and educate people. I was only a child in the 90’s when I was diagnosed with two rare diseases – Familial Adenomatous […]

What to Do After a Diabetes Diagnosis

CJ Walker’s guest post today is about what to do “After A Diabetes Diagnosis.” She gives us eight steps to take. Personal note: After living sixteen years with a diabetic husband, I wholeheartedly endorse her ideas.CJ helps others understand how to live successfully with diabetes. She blogs at The Genetic Diabetic and writes for The […]

Invisibly Ill with Sjogren’s Syndrome. What Now?

Becky Kluckner, today’s guest writer, shares the story of her diagnosis of Sjogren’s syndrome and how she copes. She, her mother, and sister write “Life on Sixth Street,” a Christian family lifestyle website. Emily contributed in May and her mother in June. The story begins After years of random, uncomfortable symptoms like dry eyes, dry […]

What Happens When the Chronically Ill Get Sick?

Sickness and chronic illness. But, if a person is chronically ill, aren’t they sick all the time? Maybe, maybe not. Chronic illness has become a catchall term encompassing disorders as well as actual illness. Therefore, many invisibly disabled people cannot function normally, even though their health is good. I fall in this group. My problems […]

Another New Diagnosis? Shattering News?

When yesterday’s normal becomes today’s impossible, changes must be made. You’ve gotten used to your difficult life, and now the doctor proclaims a new diagnosis for you, an invisibly disabled person. What an impossible situation! What is your first reaction? Dismay? Disbelief? Crying? Upset? Fear? Denial? My Life I probably felt all of the above […]

Pain Relief from a Spinal Stimulator

Note from Connected Carole: This month’s guest post is an 18-minute video from Joseph. It showcases a spinal stimulator success story. I have included notes to introduce the subject before you watch the video. Our guest videographer Joseph of Borg, Producer, the Chronic Pain Call-in Show on Sunday evenings, 7:30 p.m., Central time See his […]

Panic Free by Tom Bunn, A Book Review

Panic Free by Tom Bunn Panic Free: The 10-Day Program to End Panic, Anxiety, and Claustrophobia by Tom Bunn "In a state of near panic, most people are simply incapable of rational thought. Under stress, imagination takes over, and a situation that is not life-threatening is experienced as life-threatening. That is the first factor that […]

Same Kind of Different As Me book review

Note: This book does not deal specifically with chronic illnesses. But, it has such impact I had to share it with you. However, some parts definitely do apply to our journeys. A modern-day slave, an international art dealer, and the unlikely woman who bound them together. Such reads the tag-line for this book. Same Kind […]

Category Archives: Medical issues