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Upcoming supremely important activity? What happens if you can’t?

The scene As Joe and I were preparing to leave for the happy/sad week with my family, we had a major plumbing problem. Since we could not resolve it before leaving, we left on our mini vacation anyway. Friday, we traveled seven hours to our son’s home, which we used as home base. Monday, we […]

Life Happens – Unexpected Changes – What Now?

My apologies for this abbreviated post. My planned post was in production when life happened. I will post it, though, sometime in May. Meanwhile, how do we chronically ill people adapt our plans when they change unexpectedly? When problems of life intervened in my plans, I realized we will be leaving next week for two […]

Let’s Use Planning To Make A Beautiful Christmas!

So, we have a chronic illness – or two – or more! Can people with chronic illness do any planning for Christmas? Will it make any difference? I say emphatically YES! See why we should plan and how to accomplish it. My only planning BL (before limitations) involved the meal for Christmas Day. I knew […]

What Happens When the Chronically Ill Get Sick?

Sickness and chronic illness. But, if a person is chronically ill, aren’t they sick all the time? Maybe, maybe not. Chronic illness has become a catchall term encompassing disorders as well as actual illness. Therefore, many invisibly disabled people cannot function normally, even though their health is good. I fall in this group. My problems […]

Advent Begins

But Thanksgiving just ended, didn’t it? Yet, Christmas is already on the way. The combination of Advent times and chronically ill people can make for difficult days, as preparation is so much harder for us. One definition for advent is a coming into being, or arrival. In Christian terms, it refers to the arrival of […]

Can Planning Help? Yes! Will Planning Promise Success? Well …

I made it! I really, really made it! The waves of the Pacific Ocean are lapping at my feet. However, the trip didn’t go as envisioned; it didn’t live up to expectations. Maybe you can learn from my mistakes. Our travels Preparation We planned a 15-day, 1050 mile camping trip, ending with another three days […]

How Do You Respond When Your Plans Change Unexpectedly?

Invisibly disabled people's plans change unexpectedly. How do you feel? Confused? Sad? Angry? Disappointed? Serendipitous? Invisibly disabled people's plans change. Well, so do everyone’s plans, at times. So what? I would argue that our plans change more frequently than others’ plans. Suddenly. Unpredictably. Unacceptably. Is there anything we can do? One day, I had “have-to” […]

The Dentist Got Me!

The best-laid plans … Joe and I are planning A Celebration of Memories for our 50th Anniversary in 2 weeks. I had a reasonable schedule for making plans and preparations and was making reasonable progress. And then … a routine dental visit resulted in the discovery of an abscessed tooth that needed to be extracted […]

How ingenious can you be?

What did you do before your limitations set in? Yard work, gardening, quilting, traveling, mechanic-ing? Why did you stop or curtail the activity? Too hard? Tiring? Too time consuming? Injury causing? Lack of help? See how the invisibly disabled adapt activities. You did it before? You can do it again – maybe! Reasons are as […]

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