Today, we have the luxury of an abundance of information about living with invisible disabilities. There are websites. You can Google almost any term and find articles about it. Books, especially with the advent of self-publishing, abound and are easy to find on Amazon and other retailers.
When I first figured out that my limitations would last the rest of my life and probably worsen, I wanted so badly to hear if others had experienced such events. Forty years ago, there were no personal computers, hence no internet. I checked libraries for books but found none. I listened to radio programs and discovered one book describing related problems.
Do you know what invisible disabilities are? How to bloom in the storms if you have a chronic condition? Where to start finding the info? Why not let me do the work of tracking down good information?
I have several pages of links to curated articles on various subjects on the Even More Info pages. But it appears no one checks them out. I’m curious to know whether this happens because people aren’t interested. They may already be getting information from other sources. Or maybe the pages are titled wrong. Possibly, the links are on the wrong pages.
Survey
Below is a survey I hope you will take a few minutes to fill out to help me understand the problem.
Summing Up
My preference would be to break up categories on the Even More Info pages, putting each on the relevant Dweller or Observer page. For example, the Practical Helps tab would go on the Dwellers>Practical Issues page. At least, that is what I am leaning toward. If I do this, though, it will be a slow project.
Stay tuned.
If you are navigating your storms, how has finding information about your specific problems helped you cope better?
If you are an observer of others’ storms, has learning about their problems help you help your friends?
Investigate Further
One site with in-depth information about living with invisible chronic illnesses is the Invisible Disability Association.
Joni and Friends contains information about disabilities in general.
Sites abound which are written by people with chronic conditions. Just Google the name of the disease to find one. As always, exercise care when researching on the Internet.
Note:
This is an interview I did with Cassie Creeley about invisible disabilities.
