Younger man helping older man with walker.

Attention: Caregivers Really Do Need Your Help!

Helping caregivers of invisibly disabled people relieves their stress. What stress? They’re able-bodied; what problems do they have? Stresses on their time, abilities, emotions, and often their income.

Do our caregivers need help? Why? Aren’t they doing just fine? You’re the one that hurts, not them.

Observer, you understand your friend is invisibly disabled, but do you know how much his spouse or parents or children have to do for him? Do you realize your friend couldn’t participate as much in life if not for her helper(s)?

Helping caregivers of invisibly disabled people also helps your disabled friends.

Real-Life Example

Joe standing by Carole in her wheelchair

Joe, my husband, best friend, and caregiver on our 50th

I’ll use my husband, Joe to illustrate one caregiver’s life. We’ve traveled 40 years of invisible disabilities. No, he doesn’t have to feed or clothe me or do personal care. But relatively little else would get done without him, and I’d rarely get outside the home.

I wear a TENS requiring him to put on and take off my electrodes every day. No biggie, right? Just takes a couple minutes morning and night. But for 27 years? That gets old. Then there are all the “little” things he does: fetch my needs when I’m too exhausted to get up; answer the phone I forgot to put by me; put away groceries. And the bigger things: fix most meals; drive me everywhere; finish the washing when I can’t. And the BIG things: heavy housework, pushing a wheelchair. And so many other things.

Yet, even those who know of my problems likely do not realize how much he does or the toll it takes.

How many other family members are out there doing that much and more? And someone has to make a living. Have you thought about how much a caregiver does for your friend? Not to mention the emotional toll of seeing a loved one hurt. Or the human reaction when one has to do everything.

Many caregivers need relief, acceptance, and affirmation. A little respite goes a long way in helping them cope. Take the ideas below and tailor them to your situation and your friend’s.

11 Possibilities for Helping

Note: These possibilities depend on your relationship with the caregiver. Is he your caregiver? Does she take care of your friend? Is he an acquaintance? Maybe she’s a stranger. Adapt as appropriate.

  1. Realize, acknowledge, and affirm the work he does and the stresses he lives with. Sometimes, that is the biggest thing you can do.  
  2. Write her a note of encouragement.
  3. Call him just to say you’re thinking about him.
  4. Acknowledge time and money limitations and understand she may not be able to join in some activities.
  5. Use humor to relieve stress.
  6. Offer a couple hours respite care, so he can go shopping or pursue a hobby or just do nothing.
  7. Consider doing house or yard work. Or offer to pay for it.
  8. Take the kids out for a fun time.
  9. Suggest taking the disabled person to her next doctor’s visit. Or take her shopping. Or to Church.
  10. Loan him a movie or book to enjoy.
  11. Point her to a website or Facebook group for caregivers.

So, be on the lookout for opportunities to help. Is your friend suffering? Does he have a caregiver? What does her caregiver do? Is there some way you can lighten the caregiver’s load, if even just for a little while? Use these ideas to jumpstart your own imagination. Personalize them to help someone you know.

Your Turn

If you have a caregiver, how have you helped or encouraged him/her?

What ideas do you have about helping the caregiver of a friend or family member?

 

Sad, hurting man sitting outdoors on bench with hand covering face.

More Info

Websites for caregivers

  • Caring Right at Home: Information, Advice and Support for Adult Caregiving. An organization offering news and articles for caregivers.
  • Facebook page for caregivers: The Caregivers Space.

Helping ideas

  • Caring News presents an article to help relieve caregivers at holiday time.

Stories by caregivers

  • Rob, both negative and positive, about caregiving for his wife, Bridget, on their website, The Bimblers.
  • Read Michelle’s as she became a caregiver for her husband.

Pressures caregivers face

  • NIH study of family and unpaid caregivers highlights pressures they face.

 

Posted in Caregiving and tagged , .

4 Comments

  1. This is a great post. You and your husband are so inspiring. My husband/caregiver are much earlier in our relationship: it’ll be 5 years of marriage this May. Tip #1 is something I really try to practice in our relationship. I know my illness is hard on him, as well as me, but in a different way. We try to talk openly and honestly about that struggle, knowing that it’s not about me being a burden; he just hates seeing me suffering. Caregivers have unique challenges but talking about them can strengthen the partnership, rather than creating secret issues and resentments.

    • Good luck in your future. It’s a hard life, but still worth living. At least, we had 12 years and our 2 sons before my problems started! Communication is even more critical than for others, especially when we feel bad. Thanks for taking the time to comment.

  2. Absolutely love this post, Carole. Caregivers also sacrifice so much of their lives and are also exhausted. They do deserve more recognition, support and affirmation!

    • Thanks. Sometimes “friends” acknowledge I have problems, but don’t or won’t realize that because of Joe’s care for me he doesn’t have the time to enter their activities. So frustrating for me. He deserves their consideration, too.

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