Navigating the Storms

Thriving in the Midst of Invisible Disabilities

Websites

Groups, Blogs, and Info Sites

Group and associations websites contain comprehensive information for the hurting and for the caring. Their sites offer education about living with disabilities including ideas for helping the hurting. They provide resources for people who need help and for those who help. Bloggers write about invisible disabilities from a personal standpoint. They often post articles by others who have experienced limitations and by people who have assisted. Informational sites have extensive links to other sources for further information. If you find other websites about invisible disabilities or about specific conditions, or find more associations, please let me know on the

 

Groups and Associations

Where Is God Ministries

Their Purpose Statement

“A place of compassion and understanding for believers living with chronic illness and pain,” states the homepage of Where Is God Ministries.

What You Can Find There

  • The page “Why Does God Allow Suffering?” has links to multiple articles on the subject
  • Other pages discuss additional aspects of this issue
  • Bookstore and T-shirt shop

Joni and Friends

Their Purpose Statement

“Welcome! Our ministry is dedicated to extending the love and message of Jesus Christ to people who are affected by disability around the world.” Joni and Friends is founded by Joni Eareckson Tada.

What You Can Find There

  • Lists and explanations of the multiple ministries run by Joni and Friends
  • Bookstore
  • Resources for help, education, and training
  • Daily devotionals

Rest Ministries

 Their Purpose Statement

Rest Ministries, Inc. is a non-profit Christian organization that exists to serve people who live with chronic illness or pain, and their families, by providing spiritual, emotional, relational, and practical support through a variety of programs and resources. . . .

“We also seek to bring an awareness and a change in action throughout churches in the US, in regard to how people who live with chronic illness or pain are served, and teach churches effective ministry tools in ministering to this population. One tool for this purpose is National Invisible Chronic Illness Awareness Week, of which we are the founders and sponsors.”

 What You Can Find There

  • HopeKeepers groups
  • Daily devotionals
  • Book/gift store
  • Rest Ministries Sunroom online social network

Invisible Disabilities Association

Their Purpose Statement

“The Invisible Disabilities Association strives to bring awareness about illness, injury and disability to friends, family, co-workers, businesses and more.”

 

What You Can Find There

  • An excellent booklet: “But You LOOK Good: How to Encourage and Understand People With Illness and Pain
  • Bookstore
  • Online social networking for the invisibly disabled through Inspire
  • Resources for encouragement and education for the disabled and their families and friends
  • Invisible No More: online campaign to raise awareness about invisible disabilities

Blogs

Place for Young Women to Gather

Chronic Babe by Jenni

A young woman with multiple invisible disabilities hosts this site for other young women who likewise suffer. Her purpose is to encourage, support, and inspire them to achieve a full life in spite of their difficulties.

For Christians Living with Illness and Grief

Fruitful Today by Ruth

Ruth is a young mother with invisible illnesses. She brings devotions and printable resources to you. She also has an interview series called “The Bridge” about the invisible disabled and their church relationships.

A Place of Encouragement for the Chronically Ill

Chronically Constant by Ally

“Hi! My name is Ally. I am a teenager who is struggling with chronic illness.” So starts Ally’s “About” page. Her blog exhibits a maturity beyond her years. Definitely worth a read.

Informational Sites

Calling all Parents of Special Needs Kids

Sarah from Caring4OurKids says, “We are a group of parents of children with Autism Spectrum Disorder and a few comorbid diseases such as Chronic Fatigue Syndrome and Fibromyalgia. We've come together and are creating a site of original and curated resources to help other like us.”

This site is a work in progress. Can you help them out? If you have information dealing with children with special needs, contact them with questions or resource information. Check out their “Resources” section.

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