Navigating the Storms

Thriving in the Midst of Invisible Disabilities

Articles

Articles About Living with Chronic Illness and Invisible Disabilities

articles about living with chronic illnessesListed here are various articles with info about living with chronic illness and invisible disabilities. There will also be articles for observers dealing with how to encourage, understand, and help the dwellers. I will be adding to these as time and strength permits. If you come across informative articles, please recommend them for review by submitting the contact form at Learning More. Please include author and producer info.

 

For Parents of Disabled Children

Resources listed below especially for parents of special needs children

Submitted courtesy of Caring4OurKids

Sesame Street Helps Parents of Children with Autism

“Celebrate the uniqueness of each and every child.”

This website contains helpful resources complete with Sesame Street characters for parents. Read stories of individual children. See the potential of each child. Listen to “The Amazing Song.

Do You Need a Will?

“Estate Planning for Parents of Special Needs Kids”

No one likes to think about death, but each of us should have insurance and wills in case of unforeseen circumstances. This is especially true for parents of special needs kids. Packed with questions and advice to consider about estate planning and who will take care of your child.

Fix Your Home for a Disabled Child

“Creating a Home Where Your Child Can Thrive with a Disability”

If you have a special needs child, you likely have concerns about your home. This article covers various types of disabilities. Addresses financial issues.

Reduce the Noise

“Help Loved Ones with Sensory Overload Enjoy Shopping”

Helps when shopping with people who have sensory overload. Common causes: autism, schizophrenia, Chronic Fatigue Syndrome, migraines, Fibromyalgia. Adults as well as children can be affected. It explain what the condition feels like and some signs of overload. It also contains tips to prevent or lessen the problem, and to help shopping become enjoyable.

Helps for Military Families

Are you a military family with a special needs member? Help is available through Exceptional Family Member Program. Would you like to help a military family? You can volunteer, advocate, or support financially. (See Wikipedia for more info about the organization.)

Educational Concerns for Parents

Does your child need an accommodation at his school, so he can learn better? See this article for possibilities. Learn what the law is. See even more resources.

The Meaning of Invisible Disability

Overview of Invisible Disability

What is an Invisible Disability? by Invisible Disabilities Association

Excellent overview of what an invisible disability is and how it affects an individual's life.

For Further Understanding of Invisible Disabilities

"Invisible Disability: Demystifying Disability" by Jasmine Leiser, The Daily California, March 23, 2015

A good source of information about visible versus invisible disability. Especially helpful for those not familiar with invisible disabilities. Includes the experience of a young woman living with Lupus.

How One Doc Views His Chronically Ill Patients

A Doctor’s View of Patients with Chronic Disease by Rob Lamberts, MD

Dr. Lamberts has written an excellent article from the doctor’s perspective. He shares why he claims that these patients scare doctors! He explains why people who will never get well are a challenge to doctors. He includes specific ideas for these patients when they have to see a new doctor. It is well worth the time for dwellers and observers to read.

Personal Experiences

Naomi’s Story

People With 'Invisible Disabilities' Fight For Understanding by Naomi Gingold

She just wants understanding. She deals with her physical challenges, but she also has had to deal with people who don’t understand and don’t give her the benefit of the doubt. NPR presents this story, accompanied by a video.

Joni’s Encounter

Invisible Disabilities, a radio interview with Joni Eareckson Tada.

Remembering her encounter with an invisibly disabled person, Joni recounts differences between visible and invisible challenges.

Helping Others

Wonder What To Say – Or Not?

“Ministering to the Chronically Ill” by Rest Ministries.

Write-up of an interview with Lisa Copen, founder of Rest Ministries concerning the National Invisible Chronic Illness Awareness Week of 2007. The facts are still applicable to understanding your friend's struggles, including information about phrases that hurt-ers find unhelpful. See Invisible Illness Week for up-to-date info on the most current week as well as general knowledge about the subject.

Tips for Interacting with Disabled Persons

Helping Disabled by dcsvelan

Are you knew at interacting with physically challenged people? This article’s for you. Its’ tips, though, are good for anyone befriending and/or helping the disabled. A bit wordy, most of this is common sense, but it’s worth the read.

Can Churches Help?

Ministry to the Disabled by Kit Watts and Ron Bowes

What one church considered about ministering to the disabled. Includes some questions for churches to consider. Attitudes challenged. What about your church? How is your attitude toward disabled people? Are there barriers in your church? As an able-bodied person, you may not recognize barriers. Ask a disabled person; you may be surprised.

Helps for Helping

When a Friend Has a Chronic Illness: What to Say, How to Help By Lisa Copen

Full of thoughts about what to say – or not to say – to your friend. Contains specific ideas about how to help. I have experienced – or wished I did – most, if not all, of these events. You are given permission to copy and print out this article for others.

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